[SAFESPACE] Support thread for people with disabilities

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Re: [SAFESPACE] Support thread for people with disabilities

Postby Роберт » Thu May 10, 2012 2:25 pm UTC

Angua wrote:I'll spoiler this because it isn't really that serious compared with what most people in this thread go through:
Spoiler:
So, I have different lengthed legs - 14mm difference, which is actually pretty significant. It's mainly only affected me by being a major nuisance when buying shoes (many shoes can't be altered, and often putting a lift on the bottom means I lose all the grip, which is a bad thing for things like walking shoes) so I've never really thought of it as a disability. However, it's also left me with mild scoliosis, and I can't stand barefoot for long lengths of time without getting lower back pain (I generally get around this by moving around, or standing on one leg). However, now I'm going to clinical school, I'll have to be in surgery, for a couple hours at a time, in the sterilized clog things they have. I was planning on getting a removable heel made for that, but my SO told me that more of the shoes don't have heels, which would mean it would just slip out! So, I sent an email asking about it to the administrators about it, and got a reply which sort of made it sound like they didn't quite believe me, and wanted me to get a consultation at the orthopaedic centre (which confused me). I went to the gp (as you need a referral), and thankfully he was a lot more serious about it, though he was also a bit confused about why they wanted me to go for a different consultation, especially given that leg-length problems are normally referred to podiatry anyway. So now he's writing to a different person at the medical school who he says will be a lot better about trying to sort out a solution. The gp even told me that I might have to buy my own shoes, which I told him I'd offered to do in the email I sent, but they'd said it was absoutely not allowed due to possible contamination. He said that that was a bit ridiculous, and that they had to make reasonable allowances for people with disabilities, and it seemed pretty reasonable to him. I hope that turns out to be the solution rather than the other person's, which had been 'we'll ask the surgeons not to make you stand up too long' - which, when I can't stand an hour would be a bit difficult.

So, now I'm worried that by the time I get there, all the people in the theatres will be pre-disposed to being a bit annoyed with me. I'm also a bit annoyed that they didn't just ask for a conformation from the gp (which he said was all that was really needed) rather than them telling me to go to some specialist, which wouldn't really be able to help that much. I was even more annoyed when they asked if I had a special interest in surgery when they were telling me it would be that much - I know that it varies from firm to firm, but on the surgical rotations you can spend almost a day in there if you so chose, and I'd hate to have an entire half of medicine denied to me because of this. Surgery still has a lot of sexism in it, and I don't want to go in already being seen as weak.

Sounds like the medical school administration doesn't understand medical issues very well. :/

E-hugs.
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Re: [SAFESPACE] Support thread for people with disabilities

Postby felltir » Thu May 10, 2012 9:18 pm UTC

I'm getting worse.
Spoiler:
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Re: [SAFESPACE] Support thread for people with disabilities

Postby Роберт » Thu May 10, 2012 10:09 pm UTC

felltir wrote:I'm getting worse.

:(
I extend my offer of e-hugs to you as well.
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Re: [SAFESPACE] Support thread for people with disabilities

Postby mochafairy » Tue Jun 05, 2012 4:48 pm UTC

GRRRRRRR!!!!!

My insurance company is telling me that "<insert company my SO works for> prescription plans will require that you try an alternative listed" because the prescriptions I'm using now apparently aren't cost effective for them.

So, I have to switch insulins and meters. I have to try them for at least a month, and then, if I want to switch back, I'll have to pretty much get a fucking letter from my doctor every month to get an override. Because that's what insurance companies do. This is what they've done the past 10 years, I just now get to deal with it myself.

Fuck you, insurance company!
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Re: [SAFESPACE] Support thread for people with disabilities

Postby natraj » Tue Jun 05, 2012 4:54 pm UTC

ugh, mocha, that is really obnoxious. i freaking hate dealing with insurance it is so obnoxious how much control they exercise over our health. x.x
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Re: [SAFESPACE] Support thread for people with disabilities

Postby New User » Tue Jun 05, 2012 6:19 pm UTC

Agreed. It's pretty sad how much I have to pay for health care, compared to how much my government pays for violence.

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Re: [SAFESPACE] Support thread for people with disabilities

Postby mochafairy » Wed Jun 06, 2012 2:25 am UTC

I got a call from the insurance company, mainly for them to make sure I received their letter.

In the conversation, however, the rep seemed to make somethings clear:
  • I have to try their alternatives
  • I can only get an override if necessary, and necessary is to be determined by them
  • They only give out a certain number of overrides

So, if I happen to, I don't know, like what I've been using for the past ten years, even after trying the alternative, I can't get an override unless it's medically needed (I'm guessing if the meds "don't work" for me, or if I'm allergic...those seem like they'd be legit reasons), and even then it might not be approved because they only give a limited number of overrides. :evil:

Ugh. I think I hate them more this evening than I did this morning.
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Re: [SAFESPACE] Support thread for people with disabilities

Postby setzer777 » Tue Aug 28, 2012 6:48 am UTC

Something happened recently that was so ridiculous you'd think it's a joke.

Girlfriend almost got a job at the Department of Aging and Disability Services, but their office did not have accessible bathrooms (they technically satisfy the law, but their heavy wooden doors are impossible for her to open) - this included the bathrooms in the lobby. When she asked them to put in buttons they said that they would not because they were currently renovating (they didn't say anything about doing so after renovations). The staffing agency that had presented her the job (and who advertised themselves as being particularly for people with disabilities ) blew her off when she asked them to talk to DADS about installing buttons for the sake of future applicants, basically saying that since she didn't get the job, it's none of their concern.

On the bright side, she did just get a job with an employer who seems extremely reasonable (it probably helps that her manager is married to a woman with CP), so that's exciting!
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Re: [SAFESPACE] Support thread for people with disabilities

Postby mochafairy » Tue Aug 28, 2012 6:57 am UTC

Sadly, I've seen crap like that happen way too many times.

I'm glad she's at a job where there seems to be some comprehension about her accessibility needs, though. I hope she likes her new job!
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Re: [SAFESPACE] Support thread for people with disabilities

Postby setzer777 » Tue Aug 28, 2012 7:01 am UTC

Yeah, I just figured DADS would want to protect themselves against irony.

I hope she does too! She had her first day today, but it was just orientation, hasn't seen what her actual job will entail yet. One thing that will be tricky is that with all of the bus transfers it takes her an hour and a half to get to work* - her employer is very accommodating in terms of scheduling, but it is still a pretty hefty chunk of the day consumed by commuting (especially since she likes to sleep 10-12 hours a night**).

*Hopefully she'll be able to get Metro Access to take her, in which case it would only take 15-30 minutes - the office isn't far in terms of straight distance.

**Random: she actually didn't sleep that much until after she got a major surgery when she was 12 (titanium rod to straighten her spine). Is there any precedent for surgery affecting sleep cycles? I suppose it could also just be that she got used to it after being confined to bed rest for so long.
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Re: [SAFESPACE] Support thread for people with disabilities

Postby mochafairy » Tue Aug 28, 2012 7:29 am UTC

That is a nice chunk of the day, and would probably cost lots and lots of spoons just to get to and from work.

I'm not sure about any studies, but it does seem that with spoonies there's constant fatigue, which might explain all the sleeping.


*Edit: wrong url
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Re: [SAFESPACE] Support thread for people with disabilities

Postby setzer777 » Tue Aug 28, 2012 7:41 am UTC

Ah, thanks for the link! I had actually never seen the original article that "spoons" came from.

Edit:

I posted this in the movie/tv forum, so I won't go on about it here, but I highly recommend the web series My Gimpy Life. It's pretty funny, and seems to capture (going by my non-firsthand experience) a lot of the stupidity and patronizing attitudes wheelchair-users have to deal with from people.
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Re: [SAFESPACE] Support thread for people with disabilities

Postby apricity » Wed Oct 24, 2012 1:17 am UTC

I just came to this thread to recommend My Gimpy Life! It is hilarious. I liked Teal Sherer in The Guild but I absolutely love her in MGL.
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Re: [SAFESPACE] Support thread for people with disabilities

Postby natraj » Wed Oct 24, 2012 5:54 pm UTC

oh man i watched the first 4 or so of these a little while back and then forgot because i'm really bad at keeping up with shows or anything but it was great! definitely +1 to that recommendation.
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Re: [SAFESPACE] Support thread for people with disabilities

Postby Rium » Fri Oct 26, 2012 11:17 pm UTC

lanicita wrote:I just came to this thread to recommend My Gimpy Life! It is hilarious. I liked Teal Sherer in The Guild but I absolutely love her in MGL.
And you can watch it on YouTube: link

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Re: [SAFESPACE] Support thread for people with disabilities

Postby mochafairy » Thu Nov 01, 2012 8:13 pm UTC

It's Diabetes Awareness Month! You can sign up to receive texts for a day to get a glimpse into the daily life of a type one, or if you have diabetes yourself, you can participate in The Big Blue Test. You can also read up, get educated, and spread the word!
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Re: [SAFESPACE] Support thread for people with disabilities

Postby 12obin » Mon Sep 29, 2014 3:42 am UTC

Hello! I will now attempt to revive this thread.
I am a wheelchair user and I'm really stoked on disability justice and liberation and whatnot. And you are all rad.
Robin, she.

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Re: [SAFESPACE] Support thread for people with disabilities

Postby Bekah » Fri Dec 12, 2014 11:27 pm UTC

where is everyone?????

Did you all get more fullfilling real world lives and move off the internets?

I hope y'all come back bc talking to myself is only fun for so long.
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Re: [SAFESPACE] Support thread for people with disabilities

Postby 12obin » Sat Dec 13, 2014 3:54 am UTC

Hey, it's somebody!
Robin, she.

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Re: [SAFESPACE] Support thread for people with disabilities

Postby Bekah » Sun Dec 14, 2014 4:56 am UTC

yay!! I'm not alone :)

I see you don't have regular internet at home...so yay for paying attention :D

I shall introduce myself now.

My name is Bekah and I am almost 37 (birthday next Wednesday) and I have a variety of disabilities I suppose, depending on how you look at things. They count for the government at least. I was born at 26 weeks and have Hydrocephalus and am legally blind as a result of all that. I also have Aspergers and PTSD. I have never been all that successful at being an adult or a parent, yet I am attempting both. I have two teenagers, my oldest will graduate next year :D and I have never been able to keep any sort of steady job, not the least of which is because it feels like I am in a foreign country with all the office politics, so I gave up trying and will just wait and see if some opportunity presents itself that is more appropriate than your typical 9-5 cubicle farm. If I had it my way, I would teach yoga, but since I can't do headstand at all, I'm not entirely sure if I can even be certified, something to find out, not to mention I don't know if I would be good at it, and it would certainly be a touchy feely class if people wanted alignment corrections! LOL!

I also have a totally blind dog named Bubba Gump that we rescued, he has retinal degeneration, so our walks are an interesting experience! LOL! We are constantly tripping over eachother but he is by far the cutest dog you have ever seen (and yes Im very biased) :D

http://s1295.photobucket.com/user/Bekah ... 6.jpg.html

I live in Southwest Florida currently but after the oldest graduates, we are moving to Charlottesville VA, hopefully for good.

I think that's about all I have to say about that.
We do not have to succumb to the tyranny of our own self judgement~~Rolf Gates


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Dexter: I have no friends, and I am totally unpopular.
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Re: [SAFESPACE] Support thread for people with disabilities

Postby 12obin » Fri Dec 19, 2014 9:13 pm UTC

Awh he is very cute
Robin, she.

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Re: [SAFESPACE] Support thread for people with disabilities

Postby Bekah » Sat Dec 20, 2014 2:49 am UTC

Thanks, I love him to death.

Do you have any plans for the holidays?
We do not have to succumb to the tyranny of our own self judgement~~Rolf Gates


Dee Dee: Dexter, what's wrong?
Dexter: I have no friends, and I am totally unpopular.
Dee Dee: Duh.

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Re: [SAFESPACE] Support thread for people with disabilities

Postby 12obin » Sat Dec 27, 2014 11:39 pm UTC

Nooope, not really. I put a string of beads around my pet tree. My dad and stepmum sent me a package.
Robin, she.

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Re: [SAFESPACE] Support thread for people with disabilities

Postby existential_elevator » Fri Sep 18, 2015 7:14 pm UTC

Dropping by on an offchance

A good friend of mine started a blog called PhDisabled a while back. It is... very slowly active, as much as a blog run primaily by people with disabilities can be. It's mostly there for disabled students to share experiences, and that includes mental health things too. We're hibernating at the moment, but that happens from time to time.

Related to that, I'm incredibly slowly pulling together a wiki for resources for disabled students and/or academics who support disabled students. It's very sparse at the moment but please feel welcome to contribute.


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